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Techniques in Regional Anesthesia & Pain Management
Volume 9, Issue 3
, Pages 122-132
, July 2005
Caregiving for advanced chronic illness patients
References
-
.
Approaching Death
(Improving Care at the End of Life)
. Washington, DC: National Academy Press; 1997;
-
.
Quality of life for family caregivers of people with chronic health problems
.
Rehab Nursing
. 1999;24:192–196
-
.
Years of healthy life
.
Healthy People
. 1995;2000 7:1–15
- . Changing patterns of death and dying . Soc Sci Med . 2000;51:917–930
-
.
Chronic Conditions
(Making the Case for Ongoing Care)
.
Monograph
. Baltimore, MD: Johns Hopkins University; 2002;
-
.
The economic value of informal caregiving
.
Health Aff
. 1999;18:182–188
, updated data from 2001
-
.
Long-term care
(diverse, growing population includes millions of Americans of all ages)
. 1994;
GAO/HEHS 95-96, Washington, DC, GAO
-
.
The Characteristics of Long-Term Care Users
. Silver Spring, MD: AHRQ; 2000;
-
.
In:
Findings from a National Survey, Washington, DC
. 1997;p. 8
-
In:
A Survey of Family Caregivers in New York City
(Findings and Implications for the Health Care System)
. 2000;p. ix–xiv
United Hospital Fund of New York, NY
-
.
Family caregivers
(burdens and opportunities)
.
In:
Morrison RS
, Meier D
, Capello C
editor.
Geriatric Palliative Care
. London: Oxford University Press; 2003;p. 376–385
-
Levine C, Reinhard SC, Feinberg LF: Family caregivers on the job: moving beyond ADLs and IADLs. Generations XXVII:17-23, Winter, 2003-2004
- . Family support in advanced cancer . CA Cancer J Clin . 2001;51:213–231
- Patterns of caregiver experiences among partners of cancer patients . Gerontologist . 2000;40:738–746
- . Family burden and quality of life . Qual Life Res . 2003;12(suppl 1):33–41
-
.
Family Caregiving in Chronic Illness
. Thousand Oaks, CA: Sage Publications; 1991;
- Psychiatric and physical morbidity effects of dementia caregiving (prevalence, correlates, and causes) . Gerontologist . 1995;35:771–791
-
.
Caregiving as a risk factor for mortality
.
J Am Med Assoc
. 1999;282:2215–2219
- . Physiological and physical concomitants of caregiving (introduction to special issue) . Ann Behav Med . 1997;19:75–77
-
Chronic stress alters the immune response to influenza virus vaccine in older adults
.
Proc Natl Acad Sci USA
. 1996;93:3043–3047
-
.
Chronic disease in the elderly and its impact on the family
.
Family Syst Med
. 1994;12:249–267
- . Enhancing caregiver outcomes in palliative care . Cancer Control . 2001;8:36–45
-
.
Family care of the frail elderly
.
In:
Abel EK
, Nelson MK
editor.
Circles of Care Work and Identify in Women’s Lives
. Albany, NY: State University of New York Press; 1990;p. 65–91
-
.
Informal carers of dependants with advanced disease
.
In:
Addington-Hall JM
, Higginson I
editor.
Palliative Care for Non-Cancer Patients
. London: Oxford University Press; 2001;
-
.
The family
.
In:
Doyle D
, Hanks GWC
, MacDonald N
editor.
The Oxford Textbook of Palliative Medicine
. (ed 2). London: Oxford University Press; 1998;p. 909–918
-
.
Pain and suffering at the end of life for older patients and their families
.
Generations
. 1999;23:12–17
-
Understanding economic and other burdens of terminal illness
(the experience of patients and their caregivers)
.
Am J Intern Med
. 2000;132:451–459
-
.
The impact of serious illness on patient’s families
.
J Am Med Assoc
. 1989;272:1839–1844
- . The emerging role and needs of family caregivers in cancer care . J Support Oncol . 2004;2:145–155
- . Wives of elderly disabled men (the hidden patient) . Gerontologist . 1979;19:175–183
- . The Corbin and Strauss chronic illness trajectory model (an update) . Sch Inq Nurs Pract . 1998;12:33–41
-
.
Time for Dying
. Chicago, IL: Aldine Publishing; 1968;
- A cancer experience (relationship of patient psychosocial responses to caregiver burden over time) . Psycho-Oncology . 1993;2:21–32
-
.
Profiles of elderly Medicare decedents
.
JAGS
. 2002;50:1108–1112
-
.
Dying of lung cancer or cardiac failure
(prospective qualitative interview study of patients and their careers in the community)
.
Br Med J
. 2002;325:915–929
-
.
Knowledge and communication difficulties for patients with chronic heart failure
(qualitative study)
.
Br Med J
. 2000;321:605–607
-
.
Cancer Facts and Figures 2004
. Atlanta, GA: ACS; 2004;
- Cancer and comorbidity (redefining chronic diseases) . Cancer . 2000;88:653–663
-
.
Reliable, high-quality, efficient end-of-life care for cancer patients
(economic issues and barriers)
.
In:
Foley K
, Gelband H
editor.
Improving Palliative Care for Cancer
. Washington DC: Institute of Medicine, National Academy Press; 2002;p. 67–95
-
Dying trajectory in the last year of life
(does cancer trajectory fit other diseases?)
.
J Palliative Med
. 2001;4:457–464
-
.
The terminal phase
.
In:
Doyle D
, Hanks G
, MacDonald N
editor.
Oxford Textbook of Palliative Medicine
. (ed 2). London: Oxford University Press; 1999;p. 977–994
-
Dying with cancer
(patients’ function, symptoms, and care preferences as death approaches)
.
JAGS
. 2000;48:S110–S121
-
.
Care of the dying patient
(the last hours or days of life)
.
Br Med J
. 2003;326:30–34
- . Estimating the cost of informal caregiving for elderly patients with cancer . J Clin Oncol . 2001;19:3219–3225
- . Family and caregiver involvement in pain management . Clin Geriatr Med . 1996;12:531–547
-
End-of-life caregiving
(what helps family caregivers cope?)
.
J Palliative Med
. 2003;6:901–909
- . Gender as a predictor of burden and psychological distress of elderly husbands and wives of cancer patients . Psycho-Oncology . 1999;8:287–297
-
.
Quality of life of cancer patients and their spouses in palliative home care
.
J Palliative Med
. 1999;12:29–39
-
.
National Institutes of Health State-of-the-Science Conference Statement: symptom management in cancer: pain, depression, and fatigue
.
J Natl Cancer Inst Monogr
. 2004;32:9–16
-
.
Symptom management in the elderly cancer patient
(fatigue, pain, and depression)
.
J Natl Cancer Inst Monogr
. 2004;32:150–171
- . Patients who want their family and physician to make resuscitation decisions for them: observations from SUPPORT and HELP. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment, Hospitalized Elderly Longitudinal Project . J Am Geriatr Soc . 2000;48:S84–S90
-
.
Management of pain in elderly patients with cancer
.
J Am Med Assoc
. 1998;279:1877–1882
-
.
Undertreatment of cancer pain in elderly patients
.
J Am Med Assoc
. 1998;279:1914–1915
-
.
Cancer pain
.
In:
Bonica JJ
editors.
The Management of Pain
. (ed 2). Philadelphia, PA: Lea and Febiger; 1990;p. 440–460
-
.
Pain assessment and cancer pain syndromes
.
In:
Doyle D
, Hanks GWC
, MacDonald N
editor.
Palliative Medicine
. New York: Oxford University Press; 1999;p. 310–331
-
.
Psychiatric aspects of palliative care
.
In:
Doyle D
, Hanks GWC
, MacDonald N
editor.
Palliative Medicine
. (ed 2). New York: Oxford University Press; 1994;p. 933–954
-
.
Research into symptoms other than pain
.
In:
Doyle D
, Hanks GWC
, MacDonald N
editor.
Palliative Medicine
. (ed 2). New York, NY: Oxford University Press; 1994;p. 179–185
-
Improving cancer pain management through patient and family education
.
J Pain Sympt Manage
. 2003;25:344–356
-
.
Barriers to effective cancer pain management
(a survey of Australian family caregivers)
.
Eur J Cancer Care
. 2004;13:336–343
-
.
Barriers to cancer pain relief
(fear of tolerance and addiction)
.
J Pain Sympt Manage
. 1998;16:1–9
-
.
Differences in mood states health status, and caregivers of oncology outpatients with and without cancer-related pain
.
J Pain Sympt Manage
. 1997;13:138–147
- . Differences in patients’ and family caregivers’ perceptions of the pain experience influence patient and caregiver outcomes . Pain . 1997;72:217–226
-
Yates P, Aranda S, Edwards H: Family caregivers’ experiences and involvement with cancer pain management. J Palliat Care (in press)
- . What do patients living with advanced cancer and their carers want to know? A needs assessment . Support Care Cancer . 2002;10:408–415
-
.
Health related quality of life in patients with congestive heart failure
(comparison with other chronic disease and relation to functional variables)
.
Heart
. 2002;87:235–241
- . Epidemiology of heart failure . Cardiol Clin . 2001;19:547–555
- Long-term trends in the incidence of and survival with heart failure . N Engl J Med . 2002;347:1397–1402
- Living and dying with chronic obstructive pulmonary disease . J Am Geriatr Soc . 2000;48:S91–S100
- Characteristics of adults dying with COPD . Chest . 2002;122:2003–2008
- British Thoracic Society study of cryptogenic fibrosing alveolitis (current presentation and initial management) . Thorax . 1997;42:38–44
-
.
End-of-life preferences in elderly patients admitted for heart failure
.
Q J Med
. 2004;97:803–808
- Improving care for patients with chronic heart failure in the community (the importance of a disease management program) . Chest . 2002;122:906–912
- . Disease management for chronic congestive heart failure . J Cardiovasc Nurs . 1996;11:54–62
-
.
Doing whatever needs to be done
(Caregiver’s perspectives on ADLs and IADLs)
.
In:
Levine C
editors.
Family Caregivers on the Job
(Moving beyond ADLs and IADLs)
. New York, NY: United Hospital Fund; 2004;p. 1–36
-
Defining the ‘Terminally Ill’
(insights from SUPPORT)
.
Duquesne Law Rev
. 1996;335:311–336
- . Barriers to excellent end-of-life care for patients with dementia . J Gen Intern Med . 2004;19:1057–1063
- . Psychological factors in heart failure (a review of the literature) . Arch Intern Med . 2002;162:509–516
- . The dyspnea-anxiety-dyspnea cycle—COPD patients’ stories of breathlessness (“It’s scary when you can’t breathe.”) . Qual Health Res . 2004;14:760–778
- . Prevalence of depression in congestive heart failure . Am J Cardiol . 1999;84:348–350
- . Risk of depression in patients with chronic obstructive pulmonary disease and its determinants . Thorax . 2002;57:412–416
- . Living and dying with chronic obstructive pulmonary disease . J Am Geriatr Soc . 2000;48:S91–S100
- . The last six months of life for patients with congestive heart failure . J Am Geriatr Soc . 2000;48:S101–S109
- . Cost to society of family caregiving for patients with end-stage Alzheimer’s disease . N Engl J Med . 2003;349:1891–1982
-
.
Frailty—and its dangerous effects—might be preventable. Current Clinical Issues
.
Ann Intern Med
. 2004;141:489–492
- . Frailty in older adults (evidence for a phenotype) . J Gerontol A Biol Sci Med Sci . 2001;56:M146–M156
-
.
Natural history of Alzheimer’s disease
.
Aging Clin Exp Res
. 2001;13:171–182
-
Death and dementia
.
Intern J Geriatr Psychol
. 2001;16:969–974
-
.
Management of behavioral symptoms in progressive degenerative dementias
.
J Gerontol Med Sci
. 2003;58A:837–845
- . End-of-life care and the effects of bereavement on family caregivers of persons with dementia . N Engl J Med . 2003;349:1936–1942
- National estimates of the quantity and cost of informal caregiving for the elderly with dementia . J Gen Intern Med . 2001;16:770–778
-
.
Informal costs of dementia care
(estimates from the National Longitudinal Caregiver Study)
.
J Gerontol B Psychol Sci Soc Sci
. 2001;56B:S219–S228
-
Alzheimer’s Association. Statistics about Alzheimer’s disease. http://www.alz.org. Accessed 2004
- . Medical management of advanced dementia . J Am Geriatr Soc . 2003;51:S305–S313
-
.
Behavioral change in persons with dementia
(Relationships with mental and physical health of caregivers)
.
J Gerontol Psychol Sci
. 2002;57B:P453–P460
-
Alzheimer’s disease and family caregiving
(Critical synthesis of the literature and research agenda)
.
Nursing Res
. 2001;40:331–337
-
.
Pain in community-dwelling persons with dementia
(frequency, intensity, and congruence between patient and caregiver report)
.
J Pain Sympt Manage
. 2004;28:585–592
- . The problem of pain management among persons with dementia, personhood, and the ontology of relationships . Nurs Philos . 2004;5:147–159
- Assessment of pain in cognitively impaired older adults (a comparison of pain assessment tools and their use by nonprofessional caregivers) . J Am Geriatr Soc . 2000;48:1607–1611
-
Caregiving and its impact on families of the terminally ill
.
Aging Mental Health
. 2003;7:376–382
- . Patients’ perspectives on physician skill in end-of-life care (differences between patients with COPD, Cancer, and AIDS) . CHEST . 2002;122:356–362
- Hospital use and mortality among Medicare beneficiaries in Boston and New Haven . N Engl J Med . 1989;321:1168–1173
-
.
Influence of patient preferences and local health system characteristics on the place of death
.
J Am Geriatr Soc
. 1998;45:1242–1250
-
.
Place of dealth
(U.S. trends since 1980)
.
Health Aff
. 2004;23:194–200
- What impact do setting and trainsition have on the quality of life at the end of life and the quality of the dying process? . Gerontologist . 2002;42(Special Issue III):54–67
-
.
Factors considered important at the end of life by patients, family, physicians, and other care providers
.
J Am Med Assoc
. 2000;284:2746–2782
PII: S1084-208X(05)00045-5
doi: 10.1053/j.trap.2005.06.004
© 2005 Elsevier Inc. All rights reserved.
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Techniques in Regional Anesthesia & Pain Management
Volume 9, Issue 3
, Pages 122-132
, July 2005
